Colorado, US-based ClinOne, a company providing clinical trial management services, announced its plan to improve the frequency of communication between research sites, patients and their caregivers, with a media package to which the patient will have access through ClinTrialConnect platform.
The package includes a ‘thank you’ letter from the CEO of the research organisation, a newsletter focused on the studies, press releases about the organizations’ activity, scientific publications, as well as patient and caregiver stories and information about community events.
According to the company, the media package is expected to personalize the patient efforts as a study volunteer, ensure that they feel valued and appreciated, keep them engaged with the study and informed about progress.
The content will be created, translated and sent out by ClinOne on behalf of the research organisation bi-monthly, quarterly or bi-annually. Concurrently, ClinOne will be reporting to the research organisation about the patients’ engagement and read rate.
“Sites communication to patients is typically minimal and rarely oriented toward the study updates and continuing education,” Rob Bohacs, CEO of ClinOne, told us.
Moreover, a ‘major obstacle’ for communication is, according to Bohacs, coordinator and nurse turnover. “Patients may initially have a great coordinator that believes in the study, and 12 months later there is a new coordinator and they no longer provide any context or updates to patients, eliminating the small communication path that existed prior,” Bohacs said.
ClinOne CEO told us that the company aims for “more educated patients, greater patient engagement and measurable increase in retention.”
